Chapter Highlights
Volunteers Needed!
Join us in making a meaningful impact! Volunteers are the heart of our mission to support the ALS community in Florida. Your involvement is crucial in raising awareness and funding. We're dedicated to ensuring your experience is positive, effective, and meaningful.
Explore a variety of programmatic areas, including:
- š Care Services
- š£ Advocacy
- š Special Events (planning committee and/or event day support)
- š Social Media
Volunteer as an individual or bring along a friend, classmate, or colleague!Ā Complete a volunteer interest formĀ to share your preferences and learn more about the available opportunities. Let's make a difference together!
Complete a volunteer interest form.
Unlock ALS - The Key to the Cure Starts With You
When you participate in The ALS Associationās Walk to Defeat ALS, you support people living with ALS in our community and advance global research and public policy initiatives aimed at finding treatments and a cure for the disease. The funds your company will donate or raise will have a direct impact on the lives ofĀ people affected by ALS ā and they areĀ counting on you and your employees for help!
GET INVOLVEDĀ
Here are some ways you can get your company (and employees) involved in the Walk to Defeat ALSĀ®.Ā
ā¢Ā Ā Ā Form a Walk to Defeat ALSĀ® corporate fundraising team.
ā¢Ā Ā Ā Host a dress-down day fundraiser.
ā¢Ā Ā Ā Sell Walk to Defeat ALSĀ® pin-ups in your retail stores or offices.
ā¢Ā Ā Ā Offer a matching gifts program to donations made by (or even raised by) employees.
ā¢Ā Ā Ā Encourage friendly competition by posting inter-departmental thermometers or offering parking spaces to top fundraisers. Make it fun!
ā¢Ā Ā Ā Recruit volunteers to help with Walk activities (and contact your local ALS Association office to get involved in other areas of need, too).
Learn more about theĀ Walk to Defeat ALSĀ®, Sign-up, Sponsor or Volunteer.
Governor Ron Desantis includes $2.5 million for The ALS Bitner Plante initiative in the State of Florida FY 25 budget recommendation.
These recurring funds can help expand access to multidisciplinary care for individuals battling ALS.Ā
A key component to making ALS a livable disease is multidisciplinary care. Studies have shown this specialized ALS care can extend survival and improve patientsā quality of life by providing coordinated interprofessional care that seeks to address the complex needs of people living with the disease.
Learn more about ALS Certified Treatment Centers and Clinics and the multidisciplinary care model.
The National ALS Registry
The National Amyotrophic Lateral Sclerosis (ALS) Registry gives people with ALS the opportunity to get involved in research and help future generations. Research today can lead to a better understanding of the disease and potential treatments tomorrow. By signing up for theĀ National ALS Registry, being counted and answering survey questions, people living with ALS can help find answers about who gets the disease and what they have in common.
ALS Support Groups
ALS Resource Connections groups provide a caring, supportive, open environment for people to gather, connect, and talk with one another. These groups are open to personsĀ living with ALS, their families, caregivers and friends, and are located around the state. They provide opportunities to learn more about living with the disease from others who understand the challenges, and to help establish a network of valuable resources and sustained support. A Regional Program Manager facilitates each meeting and will have speakers on relevant topics combined with time for attendees to discuss and share information and provide feedback to one another.
Donate Today!
Your gift will help The ALS Association Florida Chapter support research to find a cure for ALS and provide much-needed services to people living with ALS and their families. By making your gift today, you will help sustain hope in thousands of people affected by ALS. To make an online donation, please click on the button below.
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Connect With Us On Social Media
To get the latest updates regarding what is happening in Florida to care for, treat and fight ALS, make sure to follow us on all of our social media channels:
Thank you for being a valued member of our nonprofit community. We hope you've found this newsletter both informative and inspiring. Your support and engagement are essential to the success of our mission, and we look forward to continuing this journey together. Stay tuned for more exciting news, stories and updates next month. Together, we can make a positive impact on the lives we serve. Thank you for your dedication and support!
