Local Highlights
Six Flags in Oklahoma City to Host 2024 CEO Soak
A partnership is blooming between the Six Flags Frontier City theme park and the ALS Association in Oklahoma City! Six Flags is excited to host the inaugural OKC CEO Soak event at their Hurricane Harbor waterpark attraction, and will also lead by example by nominating their own CEOs to participate in the challenge!
The CEO Soak event is slated for May 30th, 2024, and 2024 marks a milestone year for the ALS Association with the 10 year anniversary of the Ice Bucket Challenge! We will have more details to follow in the coming weeks as the event takes shape, but our hope for OKC CEO Soak is that a portion of the event can serve as a family fun community day not only for our participating CEOs and soakees, but also for the ALS patients, care givers, and their families in our community.
For more information on how to get involved or volunteer with the ALS Association, other events we have scheduled in Oklahoma near you, or to participate in our 2024 CEO Soak event, please contact at Christy Galyean at Christy.Galyean@als.org or 918-973-5630
Research Counts on You: Are You Included in the National ALS Registry?
One of the number of ways that people living with ALS can participate in research and work towards treatments and a cure for ALS is to participate in the National ALS Registry through the Center for Disease Control and Prevention (CDC). Not sure how to get started? Check out the NEW RESOURCES below! If you need assistance, reach out to your local care services coordinator.
Mindfulness, Exercise, and Nutrition to Optimize Resiliency – Free Virtual Program for Persons Living with ALS and Mobility-Related Disabilities
Join us for a special support group on Tuesday, February 20 at 1:00 pm Central Time via Zoom on the MENTOR Program. For more information and to register for the session, contact Cris Mammarelli at cris.mammarelli@als.org.
MENTOR is an 8-week introductory wellness program designed to support your health – all from the comfort of your home. Each week you’ll have access to free, online, adapted exercise classes, cooking demos and mindfulness sessions. Our supportive team of health coaches and disability health experts will help you reach your health goals in just five hours a week. Classes are offered virtually and led by disability health experts. All the equipment you need to fully participate is mailed right to your door, and all free of charge to participants.
Find out more about the program by tuning in on February 20.
Eclipse ALS with Us
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With a Total Eclipse in 2024, American Paper Optics has created exclusive Eclipse ALS glasses for safely viewing the eclipses!
For a limited time, American Paper Optics is partnering with The ALS Association to support our mission to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. From now until April 8th, 2024, for reach 12 pack of these eclipse glasses purchased, APO will donate 50% of profits to The ALS Association.
These safe solar glasses are exclusively manufactured with 2 mil scratch resistant silver/black polymer lenses that filter out harmful ultraviolet and infrared rays and intense visible light. With an optical density of 5 or greater, these ISO 12312-2 compliant and CE certified eclipse glasses are independently tested to ensure safety for all phases of the eclipse.
Enjoy the eclipse with your loved ones while also supporting the ALS community and raising awareness!Purchase your Eclipse ALS glasses here!
Become a Community Champion
You are needed as a Community Champion more than ever! Your commitment to the ALS community makes such a big impact in our goal of making ALS a livable disease. THANK YOU for joining us in 2023. We hope to have you join us in 2024 as well!
If you know someone who wants to become a Community Champion by joining our leadership council or a committee, they can sign up by clicking below.
Become an Advocate
The ALS Association is at the forefront of public policy, working to improve the lives of people living with ALS and their caregivers. This is a very exciting time for state advocacy in Oklahoma - and we need you to be part of it all! We have had some great wins and need to keep the momentum growing!
Our advocacy work focuses on educating and mobilizing all policymakers in a nonpartisan fashion to achieve the mission of The ALS Association: to discover treatments and a cure for ALS, and to serve, advocate for and empower people affected by ALS to live their lives to the fullest. Your help is needed now more than ever.
START ADVOCATING TODAY
CDC National ALS Registry - Be Sure to Be Counted!
There are many unknowns about ALS, but people living with disease can help by signing up for the National ALS Registry, being counted, and taking brief risk factor surveys to support the fight. Every piece of data collected is an important part of ALS research.
The National ALS Registry was established in 2010 to collect an analyze data about people living with ALS in the United States. Its purpose is to gather data to better understand ALS, and then use that important information to: estimate how many new cases of ALS are diagnosed each year, estimate how many people are currently living with ALS, better understand who gets ALS, better understand what risk factors affect the disease, and enhance research to find the cause(s) of ALS.
Joining the Registry is simple. If you have questions, or are not sure if you are already enrolled, there are people who can help. You can contact the Registry directly at 877-442-9719 or ask your Care Services Coordinator for assistance. Enroll today at https://www.cdc.gov/als/
