State Policy & Advocacy
Our goal is to make ALS a livable disease while we continue to search for new treatments and cures. In 2022, we began implementing the infrastructure for a hyper-targeted, nimble, and impactful state policy and advocacy program. Through collaboration with ALS advocates, staff, and The Association’s Public Policy Committee, we’ve established a unified state policy agenda that includes 12 policy priorities in alignment with our goals to 1) advance critical policies that help to find new treatments and cures, 2) optimize current treatments and care, and 3) prevent or delay the harms associated with ALS.
State policymakers have the power to change the future of ALS by taking action on The ALS Association’s public policy priorities.
Our advocacy work focuses on educating and mobilizing the 7,383 state legislators holding office today, state regulators and executives, and building out an active ALS advocate network to drive change centered in the voices of those impacted by ALS. We advance policy in a nonpartisan manner to achieve our mission.
New Tools & Resources
We have created the following tools and resources to aid ALS advocates, staff, and coalition partners in these efforts.
State Profiles
ALS Advocate Story Share
State Policy Priorities
Additional items slated for 2023 include:
- State Policy & Advocacy Issue Toolkits
- Interactive State Bill Tracker
- State Report Cards: How Livable is ALS in Your State?
- Policy Priority Explainer Videos
- State Policy & Advocacy 101 Webinar
- State Funding Infographic
