Our Care Services Coordinators' work is guided by the needs of those we serve throughout the Commonwealth.
The ALS Association Massachusetts Chapter strives to support every individual living with ALS and their families, predominantly in areas and spaces that other support mechanisms do not reach. Care Services staff help navigate insurance and other complex systems to access resources around the state. All programs and services are provided free of charge, allowing the people we support to live life to the fullest and alleviating some of the financial burden of ALS. Our purpose is to build and empower our community through continuous engagement with family, friends and neighbors.
The ALS Association Massachusetts Chapter provides a myriad of programs to people living with ALS and their families. These programs include but are not limited to:
- Durable Medical Equipment Loan Program
- Ramp Loan Program
- Insurance & Benefits Counseling
- Community Groups
- Camp Hope Loves Company
- And more!
Grants & Assistance
Our Chapter offers assistive programs to help families get the care and equipment they need that might not be covered by insurance.
Centers and Clinics
The ALS Association collaborates with some of the best ALS physicians and clinics across the United States to help ensure that people living with ALS have access to specialized care, based on best practices. The ALS Association’s Certified Treatment Centers of Excellence and Recognized Treatment Centers provide compassionate care in a supportive, family-oriented atmosphere.
Find a Massachusetts ALS Center/Clinic
Community Groups
The ALS Association Massachusetts Chapter holds monthly Community Groups
Augmentative and Alternative Communication (AAC)
The ALS Association Massachusetts Chapter’s Augmentative and Alternative Communication (AAC) Specialist Jennifer Chapin works to provide tools and education to our local ALS community.
Newly Diagnosed?
Receiving a diagnosis of ALS is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions. While no two people with ALS are alike or will experience the condition the same way, there is a great deal of collective knowledge and wisdom available from health care providers, people with ALS, family members and caregivers. The ALS Association Massachusetts Chapter is here to help every step of the way on your ALS journey.
- What is ALS? ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. There is no cure for ALS yet. Learn more.
- Downloadable materials that have been developed as communication and educational tools to help inform medical providers as well as provide pertinent insurance and family information. Learn more.
- The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases throughout the United States. Most important, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease and how it can be treated. Please help us by enrolling today.
- The ALS Association's Living with ALS Resource Guides were created because of the rapidly expanding information and research in the clinical management of ALS. Download the series here.
- Heroes who have served in the military are twice as likely to develop ALS compared to those who have not served – find more resources for Veterans living with ALS here.
