ALS Assocation

2020 Hope and Help Symposium Presentations

• Welcome/Opening Remarks & Patti Palmer Award Recognition
   - Ray Carson, President & CEO of The ALS Association Florida Chapter
• The Power of Advocacy
  - Jo-Ann Clynch, Board Member and Board Advocacy Committee Chair, The ALS Association Florida Chapter
• Ambassador of Hope Awards
  - John Cannistra, Board Chairman, The ALS Association Florida Chapter
• CDC Presentation
  - Paul Mehta, MD, Principal Investigator, National ALS Registry- ATSDR - CDC
• University of South Florida ALS Center: Active and upcoming clinical trials in ALS
  - Tuan Vu, MD, Professor of Neurology and Director of the Neuromuscular Division, EMG laboratories, and ALS Association Certified Center of Excellence at the University of South Florida - Morsani Advanced Health Center
• Mayo Clinic: ALS research, summary of the last year and current projects
  - Bjorn Oskarsson, MD, FAAN, Associate Professor of Neurology, Jacksonville Director of ALS Center of Excellence Mayo Clinic Jacksonville
• Fundamental Questions Regarding ALS
  - Veronique Belzil, PhD, MS, Associate Professor, Jacksonville, FL and Neuroscience at Mayo Clinic Jacksonville
• Understanding & Coping with Preparatory & Anticipatory Grief
  - Vonceil Levine, LCSW
• National Seating & Mobility Presentation
  - Cindi Petito, OTR/L, ATP, CAPS, CEAC, Centralized Operations Manager and TJ McEnany, Director of Clinical Business at National Seating & Mobility
• UF Health Jacksonville Multidisciplinary ALS Center of Excellence: Using telemedicine for research in ALS
  - Michael Pulley, MD, PhD, Associate Professor of Neurology Director, EMG Laboratory Director at UF Health Jacksonville Multidisciplinary ALS Certified Center of Excellence
• Holy Cross Health Phil Smith ALS Center of Excellence: Empowerment through Research and Latest Updates: HEALEY Platform Trial
  - Eduardo Locatelli, MD, Chief Medical Information Officer, Holy Cross Health Director, Holy Cross Neuroscience Institute Medical Director, Holy Cross Epilepsy Monitoring Unit
• University of Miami ALS Center of Excellence: The Future is Now: ALS Research at the University of Miami
  - Michael Benatar, MD, PhD, Professor of Neurology and of Public Health Sciences, Chief of Neuromuscular Division and Executive Director of the ALS Center at the University of Miami
• Is the Key to ALS Being Flushed Down our Toilets?
  - Richard Bedlack, MD, PhD, MS, Professor of Neurology at Duke University, Director of The ALS Association Certified Treatment Center of Excellence at Duke Health
• Amylyx Pharmaceutical Presentation
  - Joshua Cohen & Justin Klee, Cofounders & Co-CEOs of Amylyx
• ALS 101 - Newly Diagnosed
  - Camila Arizaga, MSW, Regional Program Manager (Miami-Dade and Monroe Counties) at The ALS Association Florida Chapter 
• Q & A with Dr. Bedlack
  - Richard Bedlack, MD, PhD, MS, Professor of Neurology at Duke University, Director of ALS Center of Excellence and Duke Health
• Ask the Experts
  - Michael Benatar, MD, PhD; Clifton Gooch, MD; Amparo Gutierrez, MD, FAANS; Eduardo Locatelli, MD; Björn Oskarsson, MD, FAAN; Michael Pulley, MD, PhD; Bryant Vuong, DO