2021 Hope and Help Symposium Presentations
- Presenting Sponsor - Mitsubishi Tanabe Pharma America
- Welcome/Opening Remarks
- Ray Carson, President/CEO at The ALS Association Florida Chapter - AAC Solutions for Individuals Living with ALS
- Wendy Olsen, PhD, CCC-SLP, Assistive Technology Manager at The ALS Association Florida Chapter - Non-invasive Ventilation
- Michael Reeser, BS, RRT, Millennium Respiratory Services - What's Wrong with a Little Weight Loss?
- Jeanne Struve, RD/N, LDN, Outpatient Dietitian/Nutritionist at Lee Health - Exercise that is Good: Exercise Smarter Not Harder
- Matthew J. Caraher PT, DPT, NCS, c/NDT, CSCS, Physical Therapist at the University of Miami - Swallowing and ALS
- Nicole Herndon, MS, CCC-SLP, Speech-language Pathologist at UF Health Rehab Center at the Norman Fixel Institute for Neurological Diseases - Equipment Needs and Things to Think About
- Jennifer Barrow, OTR/L, ATP, Occupational Therapist at UF Health Jacksonville - Co-Sponsor - Trulieve
- Skyler Hunt, Community Outreach Liaison at Trulieve - Equipment Loan Program and the Custom Power Wheelchair Process - Ability Medical and Numotion
- Jarrod Rowles, ATP/SMS, CRTS, Numotion and Scott Leikala, ATP, CRTS, Director of Clinical Services at Ability Medical - The Power of Advocacy and the CDC National ALS Registry
- Jo-Ann Clynch, MBA, Manager of Florida Power & Light Company/NextEra Energy and Song Xue, Public Health Analyst at Centers for Disease Control and Prevention (CDC) - Losses with ALS
- Eva Pagán-Hill, LMHC - 2021 Award Presentation
- Statewide Medicaid Managed Care - Long Term Care Program
- Chrysti Reichert, Lead Medicaid Waiver Specialist at Area Agency on Aging of Pasco-Pinellas - Community Sponsor - Amylyx
- Justin Klee and Joshua Cohen, Co-founders/Co-CEOS of Amylyx - Get the Care You Want
- Jamie Buller, LCSW, ACHP-SW, Director of Advance Care Planning at Community Hospice & Palliative Care - ALS 101: Newly Diagnosed Patients
- Camila Arizaga, MSW, Regional Program Manager, Miami-Dade at The ALS Association Florida Chapter - Financial and Estate Planning
- Brian D. Chappell, CRPS®, Vice President of Wealth Management at UBS
*Per the wishes of UBS, this session was not recorded. - Quality of Life & Mindfulness
- Molly Kilpatrick, MD, Associate Program Director Hospice & Palliative Medicine Fellowship at Mayo Clinic Jacksonville - The Outer Limits: Updates and New Directions
- Richard Bedlack, MD, PhD, MS, Professor of Neurology at Duke University, Director of The ALS Association Certified Treatment Center of Excellence at Duke Health - Ask the Docs about Clinical Care
- Volkan Granit, MD, MSc, Medical Director of the Kessenich Family ALS Clinic at the University of Miami
- Amparo Gutierrez, MD, FAANS, ALS Clinic Director at Orlando Health
- Nivedita Jerath, MD, MS, Medical Director at AdventHealth, Neuromuscular Medicine
- Bryant Le Vuong, DO, Medical Director of the ALS Clinic at Lee Health
- Michael Pulley, MD, PhD, Director of UF Health Jacksonville Multidisciplinary ALS Center of Excellence - Ask the Docs about Research
- Tuan Vu, MD, Director of the ALS Center of Excellence at the Morsani Advanced Health Center/University of South Florida
- Clifton Gooch, MD, Professor & Chair of the Neurology Department at USF Health, Morsani College of Medicine
- Michael Benatar, MD, PhD, Professor of Neurology and of Public Health Sciences, Chief of Neuromuscular Division and Executive Director of the Kessenich Family ALS Clinic at the University of Miami
- Björn Oskarsson, MD, FAAN, Associate Professor of Neurology, Director of the ALS Center of Excellence at Mayo Clinic Jacksonville
- Eduardo Locatelli, MD, MPH, Co-Director of the ALS Center of Excellence at Holy Cross Health/Phil Smith Neuroscience Institute
- James Wymer, MD, PhD, CPI, FAAN, Professor of Neurology, Chief of Neuromuscular Division at the University of Florida - Gainesville
